Who we Are
What is Talkswith M.S
Talks with M.S. acts as a big brother/big sister platform/registered charity that aims to support and empower people with Multiple Sclerosis. It was founded just 7 months after my March 2016 diagnosis. It allows people with MS to speak freely with other’s that know exactly what they are going through based on lived experiences.
Our vision and mission is to enhance the prominence of multiple sclerosis (MS) within the UK, with a particular emphasis on the underrepresented black community. We strive to promote greater representation inclusion, ensuring that we are actively part of this ever-expanding and inclusive world.
We pride ourselves in enhancing the awareness and understanding of multiple sclerosis (MS) while offering valuable advice and support based on lived experiences.
We accomplish this through a comprehensive range of services, which include but not limited to:
• Peer support groups
• Information and advice on MS via webinars & in person events
• Advocacy and campaigning
• Research participation
Our CEO
Who am I
My name is Terri-Louise Brown I am a mummy to a teenage boy and I am the CEO and founder of Talks With M.S. which is 1 of 2 black led Multiple Sclerosis based registered charities in the UK & Ireland.
I am :
- A published author.
- The Head of Marketing programmes for Sistas in Sales
- The owner of a CBD range that was curated to tackle pain & anxiety (our gummies include over 25 vitamins and taste better than some Haribo’s An accesibility / Disability consultant
I was diagnosed with Relapsing Remitting Multiple Sclerosis in March 2016 after becoming paralysed from the waist down and the rest has been a colourful journey.
I am a sibling with MS. When my younger brother Daniel was diagnosed in 2010, he was a young black man who felt isolated because of a disease we knew minimal about. I did not want anyone else to experience this, In November 2016 when I created Talks With M.S. I was in pain both physically and mentally, but I knew I needed to create a community I wish Dan had when he was diagnosed.
Our History
The Story So Far
Created a platform on the back of a Facebook post informing people of my diagnosis , Filmed a documentary about my diagnosis journey, so. far and finding out how my family and friends felt about it which then included the stories of other MS’ers, was premiered to over 150 people in the Rich Mix cinema in London Liverpool street
First ever in person support group which I hosted in my home and it was very ‘orange’
Hidden Disability Event at Westminster Kingsway College where we hosted our first stall and spoke to over 3,000 students about Talks with M.S.
Created a Bitesize MS FAQ Booklet
Wrote & Published ‘Paralysis to Heels - A beautiful struggle‘ and held abook launch that was attended by over 100 people
We created a sub brand - MS & Life Learn and chill which is our in-person events and we had our first post lockdown brunch in May 2022 with over 30 people diagnosed with MS in one room, followed by one in october with. over 30 MS’ers in attendance
We collaborated with the MS Society to host webinars for the Black Community
Friday 13th January 2023 We became an official registered Charity In March we started a UK tour of our Learn & Chill session, first stop was Birmingham
We hosted a stall at the Disability Expo
We had an overnight retreat for 26 people
We are 1 years old AND we are going INTERNATIONAL